12-Year-Old Girl Fights Rare Genetic Disorder That Kills Before The Age Of Three

For many readers out there this would be completely unbelievable. A girl who was diagnosed with a rare genetic disorder of congenital insensitivity to pain with anhidrosis (CIPA) which is nothing less than a death sentence has been able to defy all odds in setting an inspirational example of fighting death.

Image From: Facebook

The extremely rare disorder kills most while they are still toddlers. However, Georgia ore-teen Ashlyn Blocker, 12, has refused to her condition ruin her life. She has been competing in beauty pageants, playing in the school band and has been helping other children with her disease. Her parents Tara and John Blocker in an interview to Good Morning America said that they first noticed something was wrong with their kid when she was eight months old.

Image From: YouTube

According to the couple, their daughter never cried even when she was hungry or when she had a diaper rash. Upon visiting the doctor they finally found out that their daughter could feel no pain-a fatal condition that affects under 100 people in the United States every year. 'It was scary because, you know, there weren’t very many good outcomes that were involved with this condition,' said Ashlyn’s mother, Tara Blocker.

Image From: YouTube

The parents said that they had to tape up their daughter’s fingers to prevent her from harming herself.  Since the disorder is related to the way signals travel to the central nervous system Ashlyn has been involved with researchers of University of Florida to help her understand more about pain. She has also founded a summer camp for other kids who suffer from CIPA with the help of her parents.